Presentation about the frequency of dialysis, kidney transplantation and comprehensive conservative care at the 57th ERA-EDTA Virtual Congress
As part of the EDITH project, the ERA-EDTA Registry aimed to determine the number of dialysis and kidney transplant patients in Europe. The ERA-EDTA Registry receives data from national and regional renal registries. However, not all European countries have a renal registry, and this is why the ERA-EDTA Registry annual report cannot provide a complete overview of renal replacement therapy (RRT) in Europe. Therefore, in this EDITH project, the ERA-EDTA Registry data were supplemented by data from other sources, such as Newsletter Transplant, insurance data and scientific papers. To this end, data on 10 extra countries (Armenia, Germany, Hungary, Ireland, Kosovo, Luxembourg, Malta, Moldova, Montenegro and Slovenia) are included. This means that, with the exception of some very small countries (like Andorra and Liechtenstein) all nations in Europe are represented.
In addition, we aimed to estimate the frequency of comprehensive conservative care (CCM) for patients with end-stage kidney disease (ESKD) in individual European countries. CCM was defined according to the Kidney Disease Improving Global Outcomes (KDIGO) definition and consists of medical management of the complications of chronic kidney disease, nutritional and palliative care for patients with ESKD, without dialysis. CCM has become an alternative for ESKD patients, in particular for those with a short expected survival on dialysis. In 2019, the ERA-EDTA Registry administered the online EDITH Nephrologist survey and almost 600 European nephrologists from 33 European countries answered the two questions on the frequency of CCM. The help of all these nephrologists is much appreciated.
An added value of this study is that the proportional relationship of all therapeutic options for patients with ESKD in (almost) all European countries are estimated. Moreover, the substantial international differences in the frequency of RRT and CCM may inform countries about potential areas for improvement in access to the various treatment options for patients with ESKD.
Dr. Vianda Stel will give an online presentation about these results based on the EDITH project, on Sunday 7 June 2020, 17:00 – 18:30 hour (Milan CEST). The presentation is entitled “Differences in European renal replacement (EDITH): measurement brings knowledge”.
Welcome to EDITH Project
Chronic Kidney Disease (CKD) is the cause of substantial morbidity and mortality and results in major burden both to individual patients and society as a whole. Different forms of Renal Replacement Therapy (RRT) exist to treat patients with End Stage Kidney Disease (ESKD), kidney transplantation being one of them.
The Pilot Project EDITH, which is co-financed by the European Commission, aims to assess the different treatment modalities for ESKD currently used throughout the EU and to examine the factors that influence the different treatment choices. EDITH supports the establishment of follow-up registries in order to collect crucial information to increase the quality and safety of living donors as well as all transplant recipients.
EDITH is a 36-month project focusing on the differing CKD treatment modalities along with organ donation and transplantation practices and their impact on health expenditures and patient outcomes. The project is subdivided into six closely interlinked work packages realized by a multinational interdisciplinary team aiming at long-term sustainability of the registers established.
The Effect of Differing Kidney Disease Treatment Modalities and Organ Donation and Transplantation Practices on Health Expenditure and Patient Outcomes − EDITH
1st January 2017 – 30th June 2020
Grant Agreement No. PP-01-2016