As part of the EDITH project, the ERA-EDTA Registry aimed to determine the number of dialysis and kidney transplant patients in Europe. The ERA-EDTA Registry receives data from national and regional renal registries. However, not all European countries have a renal registry, and this is why the ERA-EDTA Registry annual report cannot provide a complete overview of renal replacement therapy (RRT) in Europe. Therefore, in this EDITH project, the ERA-EDTA Registry data were supplemented by data from other sources, such as Newsletter Transplant, insurance data and scientific papers. To this end, data on 10 extra countries (Armenia, Germany, Hungary, Ireland, Kosovo, Luxembourg, Malta, Moldova, Montenegro and Slovenia) are included. This means that, with the exception of some very small countries (like Andorra and Liechtenstein) all nations in Europe are represented.
In addition, we aimed to estimate the frequency of comprehensive conservative care (CCM) for patients with end-stage kidney disease (ESKD) in individual European countries. CCM was defined according to the Kidney Disease Improving Global Outcomes (KDIGO) definition and consists of medical management of the complications of chronic kidney disease, nutritional and palliative care for patients with ESKD, without dialysis. CCM has become an alternative for ESKD patients, in particular for those with a short expected survival on dialysis. In 2019, the ERA-EDTA Registry administered the online EDITH Nephrologist survey and almost 600 European nephrologists from 33 European countries answered the two questions on the frequency of CCM. The help of all these nephrologists is much appreciated.
An added value of this study is that the proportional relationship of all therapeutic options for patients with ESKD in (almost) all European countries are estimated. Moreover, the substantial international differences in the frequency of RRT and CCM may inform countries about potential areas for improvement in access to the various treatment options for patients with ESKD.
Dr. Vianda Stel will give an online presentation about these results based on the EDITH project, on Sunday 7 June 2020, 17:00 – 18:30 hour (Milan CEST). The presentation is entitled “Differences in European renal replacement (EDITH): measurement brings knowledge”.