Acknowledgement from WP4
nakos2020-09-24T09:24:51+00:00The authors sincerely thank all patients who filled out the EDITH Kidney patient survey. Moreover, we are grateful to all patients who pre-tested the survey, provided advice about the content of the survey or help to distribute the survey in their country or personal network.
Presentation about the frequency of dialysis, kidney transplantation and comprehensive conservative care at the 57th ERA-EDTA Virtual Congress
nakos2020-05-28T09:35:17+00:00As part of the EDITH project, the ERA-EDTA Registry aimed to determine the number of dialysis and kidney transplant patients in Europe. The ERA-EDTA Registry receives data from national and regional renal registries. However, not all European countries have a renal registry, and this is why the ERA-EDTA Registry annual report cannot provide a complete [...]
Presentation about barriers for RRT modality choice at the ERA-EDTA SEID congress in Vienna
nakos2019-10-17T12:37:00+00:00As part of the EDITH project, the ERA-EDTA Registry surveyed patients as well as nephrologists and kidney transplant surgeons about factors influencing the choice of treatment modalities for ESKD. Almost 8000 European dialysis and kidney transplant patients kindly completed the EDITH Kidney patient survey on treatment modality choice. In addition, more than 650 professionals from [...]
Presentation about the EDITH Nephrologist Survey at the ERA-EDTA congress in Budapest
nakos2019-06-06T13:28:02+00:00As part of the EDITH project, the ERA-EDTA Registry surveyed nephrologists and kidney transplant surgeons about factors influencing the choice of treatment modalities for ESKD. In spring 2019, more than 650 professionals from more than 30 European countries responded to the survey. We will present the first results of the EDITH Nephrologist survey at the ERA-EDTA congress in Budapest at the ERA-EDTA Registry symposium (Friday 14 June, from 8:00-10:30 hour, Hall G1).
EDITH nephrologist survey is online until the 19 May 2019.
nakos2019-04-25T07:59:38+00:00As part of the EDITH project, the ERA-EDTA Registry invites all European nephrologists and kidney transplant surgeons to fill out the online EDITH nephrologist survey. Your help is much appreciated and will guide the European Union how to improve ESKD care! Please go to the online survey via the ERA-EDTA Registry website (https://www.era-edta-reg.org) or directly [...]
WP4 patient survey
nakos2018-12-13T13:48:32+00:00AMC, co-leader of WP4, published a survey for adult dialysis and kidney transplant patients. Aim is to learn from the patients’ experiences concerning the choice of a treatment modality for their end stage kidney disease. Data collection for the survey closed November 30, 2018. For further information, please e-mail Mrs. Rianne de Jong via edith@amc.uva.nl