Acknowledgements EDITH Kidney patient survey

The authors sincerely thank all patients who filled out the EDITH Kidney patient survey. Moreover, we are grateful to all patients who pre-tested the survey, provided advice about the content of the survey or help to distribute the survey in their country or personal network.

Amongst others, we are grateful for support from:
Austria (ARGE Niere [D. Trinkl], Österreichische Transplantationsverband [M. Krimbacher], Verein Niere Vorarlberg [E. Längle]), Belgium (Fenier-Fabir and Nier Limburg [M. Mues)]), Bosnia and Herzegovina (Udruženje Dializiranih & Transplantiranih Bolesnika Federacije BiH [T. Žuljević], Bulgaria (Association of patients with kidney diseses and friends Bulgaria (ABPZ) [H. Nikolova, R. Vaklinova]), Cyprus (Pancyprian Kidney Organization [E. Groutidou Petridou]), Denmark (Nyreforeningen [K. Ertmann Krammer, P. Holm Harmsen]), Finland (Munais- ja maksaliitto (MUMA) [S. Högström]), France (France REIN, Transforme [E. Lacour]), Greece (Greek Kidney Patients Federation [T. Papadopoulos, M. Sekadakis], Sports Federation For Dialysis & Transplant Athletes [D. Arka]), Hungary (Trapilap [J. Berente], Vesebetegek Egyesületeinek Országos Szövetsége (VORSZ) [A. Ádám]), Ireland (Irish Kidney Association (IKA) [M. Murphy, C. White]), Latvia (Latvijas nieru slimnieku asociācijas (LNSA) [J. Baranovska-Kaša]), Lithuania (Gyvastis, Lietuvos nefrologiniu ligoniu asociacija), Luxembourg ( Dialyse Patienten Lëtzebuerg a.s.b [L. Chrisnach]), Netherlands (Leef Nierpatiënten Vereniging Hilversum [P. Floor], NierNieuws, Nierpatiënten Vereniging Nederland [W. Konijn, K. Prantl], Nierpatiënten Vereniging Solidair [H. Zomer], Stichting Doneren en transplanteren [M. van der Gaag], Stichting Sport en Transplantatie [J. Folkers, F. Kuipers], Vereniging voor Nierpatiënten regio Den Haag [G. van der Pol]), North Macedonia (NEFRON Kidney Patient Association [P. Baliska, D. Gorgiev]), Norway (Landsforeningen for Nyrepasienter og Transplanterte (LNT) [J. Anker Lisberg Sarpebakken, K. Fosser, M. Gonsholt, I. Østli, L. Skar]), Poland (Ogólnopolskie Stowarzyszenie Osób Dializowanych (OSOD) [M. Dębski-Korzec, A. Serwadczak]), Portugal (Associação Portuguesa de Insuficientes Renais (APIR) [M. Campos]), Romania (Asociatia Transplantatilor din Romania (ATR) [G. Tache, A. Teodorescu]), Slovenia (Sve Osmeh [J. Antic, B. Danilovic], Zveza Društev Ledvičnih Bolnikov Slovenije (ZDLBS) [L. Hajdinjak, B. Tome]), Spain (Federación Nacional de Asociaciones para la Lucha Contra las Enfermedades del Riñón (ALCER) [J. Carlos Julián Mauro, D. Gallego Azurro]), Sweden (Njürforbundet [H. Heddman, S. Norman, L. Pellborn], Ukraine (Nephro Nadiya) and from the following organizations European Kidney Patients Federation (EKPF/CEAPIR) [M. Murphy, C. White], South-east Europe transplant network Seentransplant [M. Osterc], PKD International [T. Harris], NephCure [M. van Meel]

In addition, we wish to thank many international colleagues for their help. We are grateful to every person who has helped us by translating, promoting or distributing the EDITH Kidney patient survey.

Amongst others, we received support from Albania (A. Idrizi), Austria (R. Kramar, U. Lang, G. Mayer, R. Oberbauer, R. Reindl-Schwaighofer, S. Tabernig), Belarus (K. Komissarov, K. Kurylovich), Belgium (D. Abramowicz, F. Bonkain, M. Claes, S. Claus, F. Collart, J. De Meester, L. Heemeryck, E. Meersman, L. Moyson, C. Olbrechts, S. Verhofstede, C. Swyns, C. Tielemans, W. Van Biesen, R. Vanholder), Bosnia and Herzegovina (B. Čengić-Roljic, H. Resic,), Bulgaria (E. Vazelov), Croatia (I. Bubić, M. Busic, M. Dragović , D. Lazarin, S. Živčić Ćosić), Cyprus (K. Ioannou, G. Marangou d’Avernas), Czech Republic (V. Borcany, I. Rychlik), Denmark (L. Boesby, J. Goya Heaf), Estonia (Ü. Pechter, M. Rosenberg – Ots), Finland (A. Cornér, P. Finne, R. Ikäheimo, R. Muroma-Karttunen), France (C. Couchoud, B. Hodemon Corne, V. Juventin, M. Laville, Z. Massy, M. Mongé, colleagues from Réseau épidémiologie et Information en Néphrologie (REIN)), Germany (M. Lingemann, A. Rahmel, F. Schaub, S. Venhaus), Greece (N. Afentakis, T. Apostolou, , E. Dounousi), Hungary (O. Deme, A. Mezõ, G. Reúsz), Iceland (R. Pálsson, H. Runolfsdottir), Ireland (W. Plant), Italy (R. Benevento, V. Caramia, C. Carella, P. di Caccio, L. Gesualdo, E. Mancini, A. Meterangelis, A. Nanni Costa, M. Nordio, M. Postorino, V. Sparacino, C. Zocalli), Latvia (H. Cernevskis, L. Kucane, A. Petersons, A. Silda), Lithuania (I. Arūnė Bumblytė, V. Tilvikaitė, E. Žiginskienė), Luxembourg (M. Aurich, S. Azorin Contesse, C. Braun), Moldova (A. Tanase), Netherlands (J. Bijlsma, M. Boonstra, W. Bos, M. de Jong, M. Hemmelder, A. Jaho, S. Kragten – Lathouwers, S. Logtenberg, , I. van de Meerakker – Hegge, A. Neradova, M. van Oosten, A. Ozyilmaz, M. Pippias, D. Pitters, V. Sauve, D. Struijk), North Macedonia (G. Selim, O. Stojceva – Taneva), Norway (M. Andersen, A. Asberg, K. Lønning, A. Varberg Reisaeter), Poland (S. Dudzicz, G. Korejwo, M. Nowicki, A. Wieçek), Portugal (R. Aguiar, E. Almeida, S. Fernandes, F. Marcario), Romania (L. Garneata, G. Mircescu, G. Stefan, L. Tuta), Russia (A. Andrusev, E. Zakharova), Serbia (S. Bjelica, N. Maksimovic, R. Naumovic, M. Zaric), Slovakia (R. Roland, J. Rosenberger, V. Spustova), Slovenia (J. Buturovic Ponikvar, D. Kovac, M. Malgaj), Spain (P. Barreda, J. Cannata, M. Collado, M. del Pino y Pino, M. Enma Huarte Loza, A. Ortiz, H. Zambrana), Sweden (O. Bratt, M. Evans, H. Rydell, M. Stendahl), Switzerland (I. Françoise Binet, U. Huynh-Do, F. Immer, M. Weder, staff from Inselspital Universitätsspital Bern), Turkey (M. Arici, N. Seyahi), Ukraine (M. Kolesnyk, N. Stepanova, L. Surzkho,) and Eurotransplant (P. Branger, M. van Meel, U. Samuel)

Acknowledgements EDITH Nephrologist survey

The authors wish to thank all nephrologists and kidney transplant surgeons who filled out the EDITH Nephrologist survey. In addition, we would like to thank all colleagues who pre-tested the survey, provided advice about the ethical approval in their country or helped to distribute the survey in their country or personal network.

Amongst others, we are grateful for support from Austria (R. Kramar, R. Oberbauer), Belarus (K. Komissarov), Belgium (F. Collart, J. De Meester), Croatia (I. Bubic, M. Bušić, M. Dragović, S. Živčić Ćosić), Cyprus (K. Ioannou), Czech Republic (I. Rychlik, V. Tesař), Denmark (J. Heaf, S. Schwartz Sørensen), Estonia (M. Rosenberg – Ots), Finland (P. Finne, V. Rauta), Germany (M. Lingemann, C. Wanner), Greece (T. Apostolou, E. Dounousi, G. Moustakas), Hungary (O. Deme, S. Mihaly, G. Reúsz), Ireland (W. Plant), Italy (G. Brunori, C. Carella, P. di Ciaccio, M. Postorino), Latvia (H. Cernevskis, A. Petersons), Malta (J. Buttigieg), Moldova (A. Tanase), Netherlands (F. van Ittersum, S. Logtenberg), North Macedonia (G. Spasovski, O. Stojceva-Taneva), Norway (A. Åsberg, M. Dahl Solbu, A. Varberg Reisæter), Poland (S. Dudzicz, M. Nowicki), Romania (L. Gârneaţă, L. Tuta), Russia (A. Andrusev, H. Zakharova), Serbia (R. Naumovic), Slovakia (V. Spustova), Slovenia (J. Buturovic Ponikvar, D. Kovac), Spain (C. Alberich, J. Comas, M. del Pino y Pino, M. Ferrer Alamar, B. Mahillo), Sweden (M. Evans), Switzerland (P. Ambühl, U. Huynh-Do), Turkey (M. Arici, N. Seyahi), Ukraine (M. Kolesnyk), United Kingdom (S. Fraser, G. Lipkin) and from the following organisations: EKITA (I. Bellini, R. Langer), ERA-EDTA (F. Trebelli), EuroPD (S. Davies) and Eurotransplant (P. Branger, M. van Meel , U. Samuel).