AMC, co-leader of WP4, published a survey for adult dialysis and kidney transplant patients on https://www.era-edta-reg.org/index.jsp?p=survey . Aim is to learn from the patients’ experiences concerning the choice of a treatment modality for their end stage kidney disease.
The survey is available in different languages. For further information, please e-mail Mrs. Rianne de Jong via firstname.lastname@example.org
Welcome to EDITH Project
Chronic Kidney Disease (CKD) is the cause of substantial morbidity and mortality and results in major burden both to individual patients and society as a whole. Different forms of Renal Replacement Therapy (RRT) exist to treat patients with End Stage Kidney Disease (ESKD), kidney transplantation being one of them.
The Pilot Project EDITH, which is co-financed by the European Commission, aims to assess the different treatment modalities for ESKD currently used throughout the EU and to examine the factors that influence the different treatment choices. EDITH supports the establishment of follow-up registries in order to collect crucial information to increase the quality and safety of living donors as well as all transplant recipients.
EDITH is a 36-month project focusing on the differing CKD treatment modalities along with organ donation and transplantation practices and their impact on health expenditures and patient outcomes. The project is subdivided into six closely interlinked work packages realized by a multinational interdisciplinary team aiming at long-term sustainability of the registers established.
The Effect of Differing Kidney Disease Treatment Modalities and Organ Donation and Transplantation Practices on Health Expenditure and Patient Outcomes − EDITH
1st January 2017 – 31st December 2019
Grant Agreement No. PP-01-2016